´A new baby is like the beginning of all things.
Wonder, hope, a dream of possibilities´.
Eda J Leshan
9 weeks old and given a diagnosis of Neurofibromatosis Type 1.
Emme´s family were devastated.
A condition that causes tumours to form in the brain,
spinal cord and nerves.
It is progressive and degenerative.
There is no cure.
Her diagnosis sparked intense grief,
a sense of loss of hope, of future.
With the help of The Children´s Tumour Foundation,
Emme´s family slowly adapted to her diagnosis.
Two years later,
Emme was diagnosed with a tumour in her brainstem.
It´s inoperable, life threatening.
No effective treatment exists.
The grief is unbearable.
In March 2018, Emme began 12 months of chemo.
Treatment hasn´t been successful.
Our ´Emme´s Shoes´ have been created to help keep hope alive.
All profits go directly to the
Children´s Tumour Foundation of Australia to help make the dream of a
Brisbane clinic that supports families with kids just like Emme, a reality.
Because we must look after our people,
who have so kindly given so much to us.
This is what BRAVE looks like.
This is Emme´s Story.